Next week I have two days of appointments at the hospital. The first day I'll have labs, a cardiopulmonary stress test and a right heart catheterization. These tests tell doctors if I am sick enough to be admitted to wait for a heart and move up to a different transplant status. I remain at transplant … Continue reading May 2025 Update
Tag: organ-donation
Wait For It
I am a late adapter. Last month I purchased my first iPhone without a home button. Last summer I traded in my 2008 CRV and bought my first vehicle with Bluetooth so I can finally make hands-free phone calls while driving. I don't mind waiting for new and expensive things to become old and affordable. … Continue reading Wait For It
Sabrina
Many years ago I met another ARVCer named Sabrina. She was a young mom like me and lived in West Virginia. While our struggles with ARVC were a little different, we bonded over our shared roller coaster journey with ARVC. She struggled for years with finding doctors that could treat her properly. Last summer she … Continue reading Sabrina
Heart Sick 