Thanks for stopping by my heart transplant blog. A genetic disease called ARVC made my heart sick and I now need a new one.
I have a hard time pushing my story on social media. I have been in a slow decline for 30 years with very few dramatic events. 30 years! Pushing it to the back of my mind has been a good way to live with chronic illness. I was never in denial about it. But I did not want the illness to overtake my life. I faced the realities of my illness from time to time. But mostly I just lived life the best I could. While keeping the struggles quiet and sharing with just a few people close to me.
With end stage heart failure, I want to challenge myself to share more and share more often. A part of me wants to document this journey. I also want to work on sharing the hard parts of my journey in hopes that my struggles may help others. And this is a great way to keep people updated! So thank you for joining me on this journey. I appreciate your love and support. So much. ❤️
Heart Sick 